Last August, we lost our dear Marian (Marvel) to this horrible disease. She lost her father to it in 1969. This disease runs in the family.

In October, Amaris, Marian's daughter was diagnosed with the same mutated gene that they had, c9orf72. This means that sometime between now and the age of 80, she will too get ALS and possibly Frontotemporal Dementia. FTD is something that goes along with ALS for some people, like it did for Marian. Good news is that the c9 gene is the most common type of familial ALS which means science is working hard to find viable treatment and a cure. 

Unfortunately, for many types of ALS, viable treatment and a cure are far away. 

Science is working hard to fight Nature. For Marian, nature won. Our hope that with your help, science wins for Amaris and so many others. 

This summer we will be participating in the ALS Canada Walk to End ALS. Now more than ever, the ALS community needs our support to provide hope and help to families affected by ALS. That’s why we're joining thousands of others, a part of a passionate and motivated community to “walk” in celebration of hope and a world free of ALS. Please consider supporting our team and donating towards this important cause.

Your support will help to:

• Create a better day-to-day reality for people and families living with ALS by providing community-based support throughout Ontario – like home visits and support groups – as well as necessary medical equipment like hospital beds, wheelchairs, stairlifts and other items that increase safety in the home, at no cost to those who need them.
• Further scientific progress by investing in the ALS Canada Research Program, which funds promising ALS research. The ALS Canada Research Program is the only national dedicated source of funding for ALS research across Canada. This program provides peer-reviewed grants to researchers whose work has the greatest potential to advance the field of ALS. There’s been more progress made in ALS research in the last five years than over the last century – we need to keep building on this momentum.

Join our team in making a difference. Please consider donating to our team fundraising page as we work toward a world free of ALS.

Your support is needed now more than ever – we are stronger together!