My father was diagnosed with ALS on March 10, 2023. Our world fell apart. The realization that my father, the most loving, supportive man and strong dad, will no longer be the same. A year later, we realize to what extent this illness affects our lives, but especially that of my father. My mother, his caregiver as well as his life partner, is always by his side. We realized that despite all our efforts, this illness was taking away my father's health and well-being.

Some people may not know this, but my father is a former semi-professional hockey player in the QMJHL. He knew several players who broke into the NHL, including Mario Lemieux, with whom he played in Laval. He was also part of the Hull Olympics, where he had the record for defender having scored the most goals in a match (a record that was only broken in 2013). My father was and still is a huge sports fan, playing softball, baseball, football, hockey and golf.

This illness made me realize that our life will never be the same again.

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